From Birdie Nest

Friday, February 25, 2011


Hello again,
Thank goodness its Friday.  Actually, I was glad to see Thursday because I only worked Monday and Wednesday this week.  I know it sounds like an easy schedule...but I'm such a homebody and love being at home, to keep up the house chores and keep up on the laundry.  It can pile up so fast and there are only 3 of us.  I must be whimpy!  I do have a great respect for moms who work full-time and run their house hold and all the many things required of moms.  I just can't wrap myself around that kind of life.  I want so badly to be a Stay-At-Home-Mom, that I'll try "close" to anything.  I say "close" because I won't sell my soul to the devil just to make a quick buck.  I want good, honest, and upstanding work (or work from home).  We just need a little extra, to help out with groceries or dance class fees.  So I haven't quit working yet.  (*I currently work at a CPA office, and its tax season/Man its crazy*)  That is what I hope to get out of this blog, besides of course telling "our" story and sharing with others our struggles and how we face them.  I hope most of all that I please the Lord with this blog and how I live my life.  I also want to share my love for Jesus in this blog.  HE is the reason I am happy, content (most of the time), and have a zest for life.  So I want to share that with everyone around me, so they too can experience HIS love and care, not to forget the "all important" Eternal Salvation.  Its a free gift, ya know.  The only true, free gift out there in this cold, cruel world.  I will share alot more of my thoughts on this subject on another post, and another, and so on...

So my hubby and I sat down this morning to start in on our taxes.  I have been putting all the important documents in a folder, collecting all the necessary papers and receipts, yada, yada, yada!  Well, we started entering the info in Turbo Tax, and after the 3rd W-2, we thought we were hosed!  I used to work for our town's school district.  You know how little school employees make and I was just a part-time teachers aide.  So that was no big deal because there were only 6 months on that one.  Well, I got a new job 2 weeks into the school year.  A real job, just kidding, my aide position was wonderful!  I miss it, the kids and the wonderful staff.  I just thought it was time to move on, giving my daughter more space and a little more independence, before she heads to the middle school.  She has transitioned beautifully, mom...not so much!  Anyway, back to our taxes.  So in this new 'real' job, I was making some 'real' money for a change.  Really exciting, until it comes to taxes.  I was only there for 4 months, just enough to mess everything up.  Or so we thought.  We were sad, mad, then oh well, its just money, money we were going to do --- with.  It always works out that way.  Right when you get some money in the bank to use for --- it has to go for something else!  Well, we took a break for a few hours to do other things on our day off together, and then hit it again.  After entering all our other documents and deductions (remember, we have a child with medical issues and lots of medical deductions go with that), we flipped the scale in our favor.  THANK YOU LORD!!!  Instead of owing 1K, we may now get a return.  Shew!!  We are not completely finished, but oh so close.  I hate this time of year, where you wait on pins and needles to see how you come out.  By the way, neither of us are a math wiz. Well, its been a long, unnerving day, so I gotta go to bed, I'm pooped.  Tomorrow is another day, and we can finish 'them taxes right up', then move on to fun stuff for the weekend.  YEA!

Here is the verse for today:
"Is anything too hard for the Lord?"
Genesis 18:14
The answer to this wonderful question is...NO!  The Lord can do anything and everything He pleases.  So go ahead, just ask Him and see what happens.  He wants to hear from you, no matter how big or small your question or problem or fear or worry is.  He can handle it.  I am so thankful I can turn to HIM for any and everything!

Talk at ya later!
Serving Him,

Monday, February 21, 2011

So tired!

We have had a sick kid for 2 weeks now.  First birdie had croup and was put on Prednisone (sp?).  For those of you who 'know' about that's evil and good.  It made her terribly dizzy, which is not good for her since she is wobbly on a general basis, plus she was so weak and dehydrated, it compounded the dizziness.  Found that out while I was trying  to get her out of the bathtub, and dad was not at home.  Scary having a sick, weak and dizzy 75 pound child who is as tall as me being woozzy and wobbly in a tub.  But we made it out safe, no falling down on my watch!  We narrowly escaped the hospital with this croup.  It wears her out coughing like that.  Second, birdie either had a tummy bug on top of the cough, or this croup made her gag so much she would "loose it"...if you know what I mean.  The big issue with that is, she would throw up during the night.  It always happens in the middle of the night, when we are all asleep and cozy under the covers, when suddenly we hear the tell-tale sound.  We rush in there in the nick of time to get her to the potty, just a tad bit of splatter, (of course I had just cleaned her bathroom that very day).  Curses!!!  We thought she was on the mend, so we went to 'town'.  Shopping, errands, and eating out 'cause we were all tired of being couped up.  All was going well, until 2:00am the next morn until about 5:00am.  Dad had things to do at church that morning, so he had to get up and make it to church.  Birdie and I slept in, and she was perfectly fine.  I, however, felt like I was run over by a truck!  Did I mention, I had to go into work to make up for the hours I missed during the week.  So, once dad arrived home from church, I headed to work...exhausted!  It seems to never end.  Then, we think having a three day weekend will help her heal so she can finally go back to school come Tuesday.  But, while I'm at work today, dad takes her to Urgent Care because she has a yucky looking sore  in her mouth which she is complaining about.  Mind you, she never lets us know if something hurts, until it is a problem.  So during the visit, the mouth thing turns out to be nothing, but she has a roaring ear infection.  Man sakes alive!  Does it ever end?  See why we think we should be "in" the funny farm?  I am afraid to say things are alright, but I think we really are on the mend.  God help us!  School tomorrow for her, dad at work, and yeah, my day off.  I might even take a nap, wait, no, I have a meeting at her school at 12:30 then stuff to get ready for another meeting at her school at 5:00.  Like I never ends!  Have I mentioned, we hate winter.  I guess I should be thankful, it could be way worse.  So, I'll be thankful!!

Here is another day-in-the-life with our bird!
Serving Him,

Thursday, February 17, 2011

So, here goes, the beginning!

Well, I said I'd start from the here goes!
My daughter (birdie) was born 16 days late and when she finally arrived, she was very quiet, lethargic, jaundiced, and very weak.  She had no fat left on her body, and her muscle was being eaten away.  She was too weak and not strong enough to eat.  It was a scary way to become a mommy, (daddy too).  She was in our local hospital for 5 days when our pediatrician said there was nothing more they could do for her there.  She had already had a spinal tap and been in their peds ICU on oxygen and other cords everywhere, not to forget...her head started to grow in size.  So, they airlifted her to the Children's hospital at UNM in Albuquerque.  That was so hard on us, for them to take her and not be able to be right there with her.  My father-in-law drove my husband and I down there as fast as he could.  It is about an 1 hour and 45 minute drive, but it seemed like an eternity.  We were scared and unfamiliar in this new setting.  They led us to the NICU and got us up to speed on what they were going to do and asked us ever kind of question possible.  We met so many nurses, technicians, and Doctors with enormous specialties.  They ran a gazillion tests, basically guessing at what may be wrong.

She was in that unit for a few days, while hubs and I stayed at a 'cancer' house until a room opened up at the "Ronald McDonald" house.  That was a scary, lonely and sad place, but we were grateful to have been able to stay as close to the hospital, as it was.  (It was very inexpensive compared to a hotel.)  My poor hubby had the job of calling family to give them updates on our birdie, I just cried and slept and cried some more.  Oh, and pumped enough milk to have fed all of New Mexico.  The nurses were very good at telling us what to do and when.  They had very strict rules about visitation.  With NICU, you just can't hang out in there by your baby.  Terribly hard on a new momma.  After a million tests and no answers, other than: "No, its not her kidneys, her bladder, her heart, her lungs"...she was moved to another unit, still like an ICU.  But in this room, we could be in there a little longer, and I was finally able to hold her.  Still more poking and proding, with no answers!  We finally got up the nerve to ask our Doctor back home if all this was really necessary.  He said give it a few more days and if nothing comes back, tell them you want to come home.  Boy, we were treated like criminals, taking a seriously ill newborn out of their care!  But we had to go through some class like procedures first.  She would go home on oxygen, so we had to be 'trained'.  She was there for 14 long, hard days.  She was airlifted back to our home hospital and it was so much quieter and more peaceful, not a thousand beeping monitors.  She was still in the peds ICU, but much more cozy, and the only baby.  Talk about special treatment.  Anyway, we finally got to bring our birdie home after 5 more days.  We were anxious, happy, scared, all these different emotions.  We were worried something would go wrong, because we were so used to having nurses around us all the time.  Besides the oxygen, she was also on an apnea monitor.  This machine was beeped at you when she would stop breathing.

Fast forward 12 years...she is still on oxygen, (at night only) and still has sleep apnea, seizure disorder, low muscle tone, but is the sweetest, kindest, most loving child we could ever have asked for.  We wouldn't trade her for all we have gone through, for anything in this world.  She has taught us so much!  Lots of patience, love and most of all...brought us closer to the Lord.

She has had many surgeries and tough, scary times, but we cling to the fact that Jesus is there holding her, and getting us through these times.  I will share more specific stories in other posts, about the long road we have traveled.  Some are crazy and some are quite funny, (we had to laugh or we might still be crying...), and some are worrisome.

All along the way, we have had our families, many friends and church members lifing up a gazillion prayers on birdies'  and our behalf.  She goes to an amazing elementary school with amazing teachers, aides, and kids.  She has received OT, PT & Speech since she was 3 months old, and continues to receive these services through her school.  We are so blessed to have an awesome Doctor who has been our friend as well as our childs doctor, he has been a godsend!  There are other doctors in the children's clinic in our town who are great with her as well.  We have also been blessed to have a wonderful Pastor who has been along side us on this journey.  Her story is fun, crazy and unique.  There has not been a diagnosed syndrome, believe me, they have checked on many out there, but we just take it all in stride.  We have to or we would be "livin' at the funny farm".  Some times I think we have been there, ya know, after many sleepless nights, you get slap happy.  But, those stories are for another day.

This should at least wet your appetite, there are 12 years worth of stories, so stay tuned...

The verse of the day is one of my favorites, I come back to it time and time again.

"Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God.  And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus."  Philippians 4:6-7 (NIV) 

Until next time,
Serving Him,

Tuesday, February 15, 2011

Post 4

Hello all in blog land.  I am so excited that I now have a "cute" page.  I found 'that' person who "gets" the technical stuff and she was able to walk me through the steps to make it happen.  And bless her heart...she didn't feel good, but she did it anyway.  Thanks so much April!!  I LOVE IT! :0)

Now I know how to change my background, (hopefully) and will utilize all the darling backgrounds I've found on "The Cutest Blog On The Block".  Those gals are so talented.  Thanks for the 'cute' free backgrounds!!  I'm addicted.  I just need a "birdie" to add to my page and I'll be set.  You know, from birdies nest, it needs a bird, and maybe a nest.  Oh how I wish I knew how to do this kind of stuff.  In my trusty notebook, I drew a picture of a cute tree with a nest and a family of 3 birds.  If I could just get it on this page/blog!

Anyway, I still want to start from "the beginning" of our story, but that will require some time and thought, how I want to actually write it for all to see.  So many ideas swirling around in my head...or are those my marbels?

It is getting late and I have to work tomorrow.  I'm supposed to, if my birdie would just get better and stay well.  She has had croup, and now...possibly pink eye.  I'll know for sure in the morning.  I just hate having to wake a sleeping child, to find out what they will be like.  Should they stay home, go to school?  'Cause you know good and well they won't go back to sleep if they are to stay home.  That's when the day begins...a sick kid awake that should still be asleep, that I woke up.  It is a vicious cycle.

It's a MOMs job, right ladies?

Well, off to bed, don't know what tomorrow holds, but God already does.  So why should I fret?  He's got me covered!
Night all!
Serving Him,

Thursday, February 10, 2011

Post 3

I am trying to make my page all cutesy, and I need alot more technical help.  But for is another post.

I have been super busy being a single mom while hubs was on travel for 11 days.  WOW!  I have a whole new appreciation for single parents.  Those 11 days were espacially hard for several reasons:  1) The weather was extremely cold and he usually manages the pellet stove.  Filling it and cleaning it, but I did all that plus putting blankets in front of drafty doors.  2) A very dear friend of mine passed away, very unexpectedly.  Hard dealing with the emotions and having a child in tow that does not understand my emotions; plus helping with the arrangements for the memorial service at our church.  This too my hubby usually handles, the behind the scenes in the "big scary kitchen".  Have I mentioned what a great guy he is?  He does alot for and with our family.  Like all the cooking...he is much better at it plus he really enjoys cooking, and I hate it.  I am the dishwasher, though.  So, while he was gone I had plenty of TV dinners and quick microwave meals.  We (daughter & I) are glad he's home, to handle the tough stuff, plus we are ready for a good home-cooked meal.  BTW, I did cook a casserole one night and we then had left overs, but that was the extent of my cooking.  I always say, "I would cook more if we had a better functioning kitchen", but I kinda doubt it, but it would be alot prettier.  He wants a functional/usable kitchen while I want a pretty and decorative kitchen.  One of these days...years!

I still want to start from the beginning of "our story".  Just need that technical help to get it going in the right direction.  Thanks for the prayers and support.  I want this to be a huge success, for people out the who need encouragment and to share my faith and how the Lord has helped us all these years.

Thanks for stopping by.
Serving Him,